ecancermedicalscience

Special Issue

Development of an eHealth tool for cancer patients: monitoring psychoemotional aspects with the family resilience (FaRe) questionnaire

11 Jul 2018
Flavia Faccio, Chiara Renzi, Chiara Crico, Eleni Kazantzaki, Haridimos Kondylakis, Lefteris Koumakis, Kostas Marias, Gabriella Pravettoni

In the last decade, clinicians have started to shift from an individualistic perspective of the patient towards family-centred models of care, due to the increasing evidence from research and clinical practice of the crucial role of significant others in determining the patient's adjustment to cancer disease and management. eHealth tools can be considered a means to compensate the services gap and support outpatient care flows. Within the works of the European H2020 iManageCancer project, a review of the literature in the field of family resilience was conducted, in order to determine how to monitor the patient and his/her family's resilience through an eHealth platform. An analysis of existing family resilience questionnaires suggested that no measure was appropriate for cancer patients and their families. For this reason, a new family resilience questionnaire (named FaRe) was developed to screen the patient's and caregiver's psycho-emotional resources. Composed of 24 items, it is divided into four subscales: Communication and Cohesion, Perceived Family Coping, Religiousness and Spirituality, and Perceived Social Support. Embedded in the iManageCancer eHealth platform, it allows users and clinicians to monitor the patient's and the caregivers' resilience throughout the cancer trajectory.

Article metrics: 1148 views
513
635

Related Articles

Monique Binotto, Tomás Reinert, Gustavo Werutsky, Facundo Zaffaroni, Gilberto Schwartsmann
Viviane Teixeira Loiola de Alencar, Maria Nirvana Formiga, Vladmir Cláudio Cordeiro de Lima
Paola Arnaboldi, Serena Oliveri, Laura Vergani, Giulia Marton, Paolo Guiddi, Derna Busacchio, Florence Didier, Gabriella Pravettoni
Valentina Pinzi, Valeria Landoni, Federica Catani, Roberta Lazzari, Barbara Alicja Jereczek-Fossa, Roberto Orecchia