Our website uses cookies to improve your on-site experience. By using the website, cookies are being used as described in our Policy Document
Warning: To log in you will need to enable cookies and reload the page (Policy Document)
My ePortfolio Register   
 

Abstract | Full HTML Article | PDF ecancer 12 873 / https://doi.org/10.3332/ecancer.2018.873

Research

What information do cancer patients want and how well are their needs being met?

The goal of this study is to determine the type of information cancer patients need and to measure the extent to which these information needs are met by measuring patients’ levels of satisfaction. A self-administered questionnaire developed through extensive literature reviews was pilot tested on 11 cancer patients using convenience sampling in a large ambulatory cancer centre in Singapore. All eligible patients attending the centre during a 5-month period were invited to complete the 76-item survey that had been designed to evaluate self-reported information needs and level of satisfaction with the information received while undergoing cancer treatment. The importance of information and the level of satisfaction with needs being met were assessed with the 5-point Likert scale. A total of 411 patients (50%) completed the survey. Almost all patients wanted information about the disease, tests and investigations, treatment, side-effects, sexuality, psychosocial support and financial matters, and most items listed in the questions in each selection were rated as important or very important. Responses indicate that patients were generally satisfied with the information provided especially on diagnosis and diagnostic tests, treatment and overall experience but there are information needs that need to be addressed more efficiently and effectively. The findings of this study support previous research which indicates that cancer patients who are receiving treatment have many information needs. Respondents were generally satisfied with the information provided, although some discrepancies were noted which reflect the complexities associated with cancer patient education.

Keywords: patient information needs, cancer, communication, satisfaction, importance of information, sexuality, supportive care background

Loading Article Metrics ... Please wait

Related articles

Research: Breast lesions with atypia in percutaneous biopsies, managed with surgery in the last 10 years

Abstract | Full Article | PDF | Spanish Published: 11 Apr 2019 / https://doi.org/10.3332/ecancer.2019.923

Case Report: Primary cardiac angiosarcoma diagnosed in the first trimester of pregnancy

Abstract | Full Article | PDF Published: 09 Apr 2019 / https://doi.org/10.3332/ecancer.2019.922

Clinical Study: Assessing the tolerability and efficacy of first-line chemotherapy in elderly patients with metastatic HER2−ve breast cancer

Abstract | Full Article | PDF Published: 03 Apr 2019 / https://doi.org/10.3332/ecancer.2019.921

Policy: Precision oncology in Latin America: current situation, challenges and perspectives

Abstract | Full Article | PDF | Spanish Published: 03 Apr 2019 / https://doi.org/10.3332/ecancer.2019.920

Research: Experience with concurrent chemoradiotherapy treatment in advanced cervical cancer: results from a hospital in Argentina

Abstract | Full Article | PDF | Spanish Published: 02 Apr 2019 / https://doi.org/10.3332/ecancer.2019.919



Founding partners

European Cancer Organisation European Institute of Oncology

Founding Charities

Foundazione Umberto Veronesi Fondazione IEO Swiss Bridge

Published by

ecancer Global Foundation