Communicating risk in familial cancer: the European patient's perspective

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Published: 26 Jul 2010
Views: 7630
Information and support needs
Dr Rachel Iredale, Prof Lesley Fallowfield, Carol Maddock, Maureen Gilbert, Cathie Lockenwitz, Francisca Bach Kolling-Dandrieu and Roswitha Britz discuss informed decisions.
At the time of your diagnosis did you feel you had sufficient information to make informed decisions?
Would it have been helpful to have been given information in a different way or format?
Did anyone use tools to describe risk calculations/probabilities – did they help or hinder?

We would like to thank the following patient organisations for their help:

The Danish Breast Cancer Organisation

The Federation of Breast Cancer in Spain

and the Dutch breast cancer site
& (The advocacy site for hereditary breast and ovarian cancer)