Patient engagement in The Metastatic Breast Cancer Project

Bookmark and Share
Published: 4 Jun 2016
Views: 2846
Rating:
Save
Dr Nikhil Wagle - Dana-Farber Cancer Institute, Boston, USA

Dr Wagle speaks with ecancertv at ASCO 2016 about The Metastatic Breast Cancer Project, an online outreach project connecting advocacy groups, social media and more than 2000 patients.

About 10% of breast cancer patients have metastatic breast cancer when first diagnosed, and as many as one third of all patients will develop metastatic breast cancer at some point, but only a small fraction are treated at centres which carry out research on tumour samples.

In signing up through the website, patients are asked questions about their cancer and treatments, and can give consent to have researchers obtain their medical records and collect specimens, of stored tumour samples and using a mailed collection kit to provide DNA samples.

With over 2,000 patients engaging with the site, Dr Wagle describes the value of upstream public dialogue in fostering stronger relations between researchers, primary care providers and patients.

Watch the press conference or read the news story for more.

ecancer's filming at ASCO 2016 has been kindly supported by Amgen through the ECMS Foundation. ecancer is editorially independent and there is no influence over content.