New resource to help families understand paediatric Hodgkin lymphoma

23 Aug 2023
New resource to help families understand paediatric Hodgkin lymphoma

The National Comprehensive Cancer Network® (NCCN®) today announced the publication of NCCN Guidelines for Patients®: Hodgkin Lymphoma in Children.

The book offers a comprehensive analysis of the treatment options, benefits, and risks of care approaches for paediatric Hodgkin lymphoma, one of the most curable forms of childhood cancer, with long-term survival rates of 90% or higher.

This free resource is available online at and via the NCCN Patient Guides for Cancer app.

“When a child is diagnosed with blood cancer, families are thrust into a world of worry and uncertainty and it’s critical that they have easy-to-access, up-to-date information on the disease and what to expect,” said Gwen Nichols, MD, Chief Medical Officer at The Leukaemia & Lymphoma Society (LLS).

“This excellent guide clearly and calmly covers every aspect of paediatric Hodgkin lymphoma—from testing to staging to treatment options and follow-up care—and also connects families with organisations that can offer personalised support every step of the way.” 

NCCN Guidelines for Patients are based on the NCCN Clinical Practice Guidelines in Oncology (NCCN Guidelines®) used by healthcare providers all over the world as a guide to best practices in cancer care.

NCCN Guidelines® are considered a high standard for clinical direction and policy in cancer management and are the most thorough and frequently-updated clinical practice guidelines available in any area of medicine.

The evidence-based recommendations are developed by panels of experts from across leading cancer centres that are NCCN Member Institutions.

The NCCN Guidelines for Patients contain the same treatment information as the NCCN Guidelines but are written for people with cancer and their caregivers.

They include charts and images, a glossary of medical terms, and suggested questions to ask during appointments.

An independent study found the NCCN Guidelines for Patients to be among the most trustworthy resources for people seeking online information about cancer.

“For paediatric Hodgkin lymphoma, many people are pleasantly surprised that cure rates are really high. Because it’s a rarer cancer, it’s more important than ever that there’s published, peer-reviewed guidance that people can go to for accurate information,” said Jamie Flerlage, MD, MS, St Jude Children’s Research Hospital, Chair, NCCN Guidelines Panel for Paediatric Hodgkin Lymphoma.

Source: National Comprehensive Cancer Network